MARY O'HAGAN

Democratising Psychiatry

December 2, 2010

Twitter delivered an announcement this week from the Royal Australian and New Zealand College of Psychiatrists (RNZAP) proudly stating it had appointed a ‘consumer and carer representative’ to its governing body. The Australians have the irritating habit of tethering consumers and carers with each other in the same way that the song proclaims, ‘love and marriage go together like horse and carriage’.  We all know ‘consumers’ and ‘carers’ are two distinct stakeholder groups whose interests and perspectives do not always align.

I read further down the announcement, curious to know the identity of the ‘consumer and carer representative’.  As I expected, the new member is a well known ‘carer’ advocate, a good man, but less likely to ruffle the feathers of psychiatry’s leaders than many ‘consumer’ advocates.

I visited the RNZAP website to see who and how many sit on its governing body but found I had to be a member to find out. Not a good sign. I then looked at their constitution and discovered that the governing board has about as many members as a platoon or your average school class. I don’t envy anyone who has been selected to be a minority of one in such a crowded unwieldy arrangement.

If I wasn’t such a cynic I would probably congratulate the College on taking a very small step away from being a closed club to an open democracy. And I really should congratulate them, except I’ve seen modest incremental changes flicker and die too many times to believe they herald better things to come. I guess at heart I’m a revolutionary.

So, what would a revolution inside the world’s psychiatric colleges and associations look like?

I hadn’t really asked myself this question, but recently I read an interesting chapter on democracy in psychiatry, by US psychiatrist Bradley Lewis, in a book called ‘Liberatory Psychiatry’. Click here to find out more about the book.

Lewis starts off by writing there have been many liberatory efforts in psychiatry, starting with Pinel, and followed by the likes of Tuke, Freud, Liang and Szasz. He then makes the sobering observation that all these efforts at various kinds of liberation were crafted by psychiatrists, without the active involvement of people who use their services or of other stakeholders. He concludes that the systems these liberators devised ended up ‘skewed in rough proportion to the relative input and power of those involved’. 

New liberation efforts within psychiatry should not be expert driven, according to Lewis. Key stakeholders, especially service users need to be involved, not just at the point of service but all the way up the system, to our psychiatric colleges and associations. In short, psychiatry needs to become democratised.

The main barrier to democratisation is the privileged place science has within psychiatry over other forms of knowledge. But science, writes Lewis, is a human activity like any other – driven by biases, interests, power relations and blind spots. Psychiatrists often fail to see this but if they did, science would be demoted to the same status as other forms of knowledge. An inevitable consequence would be the democratisation of psychiatry, away from ‘internal elitism’ where only those who know the science make all the key decisions.

Lewis quotes the American Psychiatric Association (APA) motto: ‘Member driven. Science based. Patient focused’. How can an association with 36,000 members who are all psychiatrists be patient focused he asks. The APA can only achieve genuine ‘patient’ focus if it becomes democracy-based rather than science-based. Science is a tool; it should not be the foundation.

Lewis suggests we need to open the membership of psychiatric colleges and associations to other stakeholders, whose power through representation should be based on how much psychiatry affects them. Therefore, the membership structure would be weighted towards the people who use services, followed by their families. Citizens and other stakeholders should also be represented. This diverse membership would have the power to make decisions about psychiatric guidelines, training requirements, journals, research, infrastructure and finances. How would decisions ever be made with such as diverse membership? Lewis suggests that proposals not supported by the majority but with over 20% support could be considered legitimate knowledge, with the caveat that it is controversial and needs further investigation.

Thank you Bradley Lewis for giving us a glimpse of what a revolution in the powerhouses of psychiatry might look like. The RNZAP has taken the first step on what could be a long journey into unknown territory. My fear is that the College will stumble and lurch back to the safety of the home plate before they take another step forward. That step would be the inclusion of a ‘consumer’ advocate on its governing body.

 

Two Accounts of Mental Distress

November 18, 2010

Many years ago, soon after I got out of the mental health system I applied to see my hospital notes. They arrived, two inches thick, inside some tidy brown folders.

I was shocked. I knew that the psychiatrists’ main interest in me was my psychopathology. I knew they found me frustrating, because their treatments didn’t work and I kept coming back. I knew they were irritated when I questioned their expertise.  But what I don’t know until I read my notes is how little regard they had for...


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The end of compulsory treatment

November 2, 2010
Western culture places a high value on freedom of the individual. We only justify the removal of freedoms when citizens transgress or are regarded as not fully human. Since the eighteenth century enlightenment, rationality has become the pinnacle of full humanity. People seen to lack rationality are easily denied full human status and full human freedoms; among them are slaves, women and mad people.  

There is a growing international movement to abolish special legislation allowing compulsory ...
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The values of peer support

October 23, 2010

In the last two years I’ve been involved in two reviews of peer support and peer led responses in Canada – one for Ontario (click to download) and the other for the whole of Canada (which has yet to be released by the Mental Health Commission of Canada).

Services run by and for ‘mad’ people have been a small but growing part of the landscape since the 1970s. Peers have supported each other informally since they were first thrown together into the lunatic asylums, and probably even be...


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User/survivor leadership

October 12, 2010

Click here to find the full article. 

The international mental health user/survivor movement has been around for nearly 40 years. It started as a protest movement but it has over time become more absorbed into the mental health system. The movement has created leadership opportunities in its independent activities, and the idea of leadership in one’s own recovery, but the policy of service user participation in mental health services has failed to deliver consistent participation, let alon...


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The beliefs that drive services

October 6, 2010

The mental health sector, like any other, is crowded with bureaucracy, politics, standards, indicators, jargon, gossip and other day-to-day diversions. In this atmosphere it’s difficult to disentangle oneself enough to burrow down and explore the bedrock of beliefs the mental health system is based upon. These beliefs drive our thoughts and feelings, our behaviour and our systems, but we are often barely aware of them.

Occasionally I get the time to dig down into these bedrock beliefs. I d...


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Psychiatric Drugs: The two stories

September 25, 2010

Psychiatric drugs are controversial. There’s the good story and the bad story. In his book ‘Anatomy of an Epidemic’, Robert Whitaker puts it like this: ‘There is a famous optical illusion, and depending how you look at it, you either see a beautiful young woman picture which tells of a revolutionary advance in the treatment of mental disorders. Or you see an old hag picture which tells of a form of care that has led to an epidemic of disabling mental illness.’

When I used mental he...


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Is the mental health system crazy?

September 18, 2010

People with major mental distress often suffer multiple personal, social and economic losses. Our personal loss of power and self-esteem does not so much derive from the condition itself, but the attitudes we and others have towards it. We may feel shame. Those around us may feel pity and fear. Our paid helpers often reinforce these responses by pathologising our experience. Once our personal losses have taken hold, a cascade of social and economic losses tends to follow, such as isolation, u...


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Thinking about suicide

September 13, 2010
Welcome to my first blog.

David Webb is a friend and colleague as well as a survivor of many suicide attempts. He has recently written 'Thinking About Suicide: Contemplating and comprehending the urge to die.' 

The book is based loosely on David's PhD, the world's first PhD on suicide written by someone who has survived it. It is not an academic book, though David does have a cerebral approach to the issue. He writes of the absence of interest in first person accounts in the suicidology literat...

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Watch this space...

September 12, 2010
Regular blogs coming very soon.
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Philippe Pinel: 'Cutting the chains of the insane'

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